Franciscan St. Elizabeth Cancer Registry

What is the Cancer Registry:

A cancer registry is an information system designed for the collection, management, and analysis of data on persons with the diagnosis of a malignant or neoplastic disease (cancer).

Cancer registries can be classified into three general types:

What information is maintained in the Cancer Registry and how is it used:

Cancer registries maintain a wide range of demographic and medical information, such as:

Why maintain a Cancer Registry:

Maintaining a cancer registry ensures that health officials have accurate and timely information, while ensuring the availability of data for treatment, research, and educational purposes:

Public health and medical providers utilize these data in a wide variety of ways. Specifically, they are used to:

Patient Confidentiality in the Cancer Registry:

Confidentiality of patient identifying information and related medical data is strictly maintained at each Cancer Registry. Aggregate data are analyzed and published without any patient identifiers. The Cancer Registry strictly adheres to the Federal Health Insurance Portability and Accountability Act privacy regulations (HIPPA).

Cancer Registry Follow-Up:

The Cancer Registry will perform Annual Follow-up on each patient in the Cancer Registry from the date the patient is diagnosed until they pass away or move out of the country. Follow-up information includes patient status (alive/deceased), on-going treatment for cancer, and any cancer recurrence.

Follow-up is performed by the Cancer Registrar as follows:

  1. Looking to see if the patient has visited the hospital in the past year.
  2. Sending a Follow-up letter to the patient’s oncologist or primary doctor.
  3. In the event the Registrar cannot obtain new yearly data from the hospital or physician, the Registrar will send a Follow-up letter to the patient at their last known address inquiring about their health.

How you, the patient, can help:

If You Move:

Send a Change of Address notification to:

Franciscan St. Elizabeth Cancer Registry
1501 Hartford Street
Lafayette, IN 47904

If you receive a letter from the Registry:

Please complete the short questionnaire and return in the postage paid envelope enclosed with your letter.

If you have questions for the Cancer Registry:

Our telephone number is: (765) 423-6236

(765) 423-6236

CancerHelp Online® is a patient education program of The CancerHelp Institute, an official Content Distribution Partner of the National Cancer Institute. Funding is provided through the generous support of The Community Foundation of Greater Lafayette and the Franciscan Alliance Foundation – Western Indiana.

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