Franciscan St. Elizabeth Cancer Registry
What is the Cancer Registry:
A cancer registry is an information system designed for the collection, management, and analysis of data on persons with the diagnosis of a malignant or neoplastic disease (cancer).
Cancer registries can be classified into three general types:
- Health care institution registries maintain data on all patients diagnosed and/or treated for cancer at their facility. Health care facilities report cancer cases to the central or state cancer registry as required by law.
- Central registries are population-based registries that maintain data on all cancer patients within certain geographical areas.
- Special purpose registries maintain data on a particular type of cancer, such as brain tumors.
What information is maintained in the Cancer Registry and how is it used:
Cancer registries maintain a wide range of demographic and medical information, such as:
- Demographic information includes age, gender, race/ ethnicity, birthplace, and residence.
- Medical history includes physical findings, screening information, occupation, and any history of a previous cancer.
- Diagnostic findings include types, dates, and results of procedures used to diagnose cancer.
- Cancer information, including primary site, cell type, and extent of disease.
- Cancer therapy, including surgery, radiation therapy, chemotherapy, hormone, or immunotherapy.
- Follow-up, including annual information about treatment, recurrence, and patient status.
Why maintain a Cancer Registry:
Maintaining a cancer registry ensures that health officials have accurate and timely information, while ensuring the availability of data for treatment, research, and educational purposes:
- Local, state, and national cancer agencies use registry data in defined areas to make important public health decisions that maximize the effectiveness of limited public health funds, such as the placement of screening programs.
- Cancer registries are valuable research tools for those interested in the etiology, diagnosis, and treatment of cancer.
- Fundamental research on the epidemiology of cancer is initiated using the accumulated data.
- Lifetime follow-up is an important aspect of the cancer registry. Current patient follow-up serves as a reminder to physicians and patients to schedule regular clinical examinations and provides accurate survival information.
Public health and medical providers utilize these data in a wide variety of ways. Specifically, they are used to:
- Evaluate patient outcome, quality of life, and satisfaction issues and implement procedures for improvement.
- Provide follow-up information for cancer surveillance.
- Calculate survival rates by utilizing various data items and factors.
- Provide information for cancer program activities.
- Analyze referral patterns.
- Allocate resources at the health care facility, the community, region or state level.
- Develop educational programs for health care providers, patients and the general public.
- Report cancer incidence as required under state law.
- Evaluate efficacy of treatment modalities.
Patient Confidentiality in the Cancer Registry:
Confidentiality of patient identifying information and related medical data is strictly maintained at each Cancer Registry. Aggregate data are analyzed and published without any patient identifiers. The Cancer Registry strictly adheres to the Federal Health Insurance Portability and Accountability Act privacy regulations (HIPPA).
Cancer Registry Follow-Up:
The Cancer Registry will perform Annual Follow-up on each patient in the Cancer Registry from the date the patient is diagnosed until they pass away or move out of the country. Follow-up information includes patient status (alive/deceased), on-going treatment for cancer, and any cancer recurrence.
Follow-up is performed by the Cancer Registrar as follows:
- Looking to see if the patient has visited the hospital in the past year.
- Sending a Follow-up letter to the patient’s oncologist or primary doctor.
- In the event the Registrar cannot obtain new yearly data from the hospital or physician, the Registrar will send a Follow-up letter to the patient at their last known address inquiring about their health.
How you, the patient, can help:
If You Move:
Send a Change of Address notification to:
Franciscan St. Elizabeth Cancer Registry
1501 Hartford Street
Lafayette, IN 47904
If you receive a letter from the Registry:
Please complete the short questionnaire and return in the postage paid envelope enclosed with your letter.
If you have questions for the Cancer Registry:
Our telephone number is: (765) 423-6236
CancerHelp Online® is a patient education program of The CancerHelp Institute, an official Content Distribution Partner of the National Cancer Institute. Funding is provided through the generous support of The Community Foundation of Greater Lafayette and the Franciscan Alliance Foundation – Western Indiana.